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Alert Number 170

Quality of Life with CLL

Mayo Clinic Survey

If CLL is such a “good cancer to have”, how come so many of us don’t feel quite so good? Unfortunately, without credible data to document our quality of life issues, we will continue to get no respect.

I am pleased to announce that CLL Topics will be partnering once again with Mayo Clinic in addressing this important issue. You can find the announcement of the Mayo Clinic survey at: QOL Survey. The results of this survey are going to be valuable to us as patients, since they will define the “Best Practices” understanding of what is going on with us, what to expect, what to watch out for, in terms of our quality of life. When Mayo experts speak, local oncologists tend to listen.

Credibility of the results will be strongly influenced by the number of patients who will take the survey. Please do this for yourself, do this for all of us. Just do it. OK?

As always, don’t hesitate to write to us if you have questions or feedback on this or any other project we champion on your behalf.

Be well,

Chaya

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